So nothing has changed, the patient is still not taken seriously. The research question was: How can the Lyme patient best be helped? If you, as program makers, really want to answer that question, let people speak who feel better by any treatment method. Then you offer the current patient the various options available.
In my opinion, it comes across that the regular doctors in the broadcast are only concerned with science and do not put the patient first. As a doctor, shouldn't you be there for the patient and not just for science? What is the point of serving science if science does not serve the patient, who does it serve? Who will benefit from this? Not the patient because they are not helped. Why are they so busy keeping that science so high and forgetting the patient? What or who do they serve then? Why was the program created if the patient has not been helped and the patient is put in a bad light? If regular doctors do nothing, then the patient is forced to look for it in the alternative?
The relevant article "Tobben door Teek" was published 2 years ago in De Telegraaf and is about my "success story". Curious as I am, I wanted to know the reason why the article is in the waiting room. A call to the clinic was easily made and that same afternoon a call appointment with Dr. Kingma was a fact. Accessible and friendly as he is, he told me that he wants to inform people with Lyme in the broadest sense of the word, for the benefit of the patient.
The past week I have considered and weighed, will I write this blog or not? During the week it became increasingly clear to me that I wanted to hear from me. The Lyme patients with whom I have contact came with a huge storm of criticism, both on the program itself and the way I was portrayed. The Lyme patients feel put away as attention seekers and are hurt. I congratulate the program makers and the doctors for their good health. It is nice for them that they can easily think about this matter. If you are as sick as many Lyme patients are, you would not think in scientific terms but only think: what can make me even better?
Fortunately, I now know for myself which treatment methods have and have not worked. Do I want to tell people with Lyme what to do with my story? No absolutely not. The important thing is that people with Lyme are still not heard and seen. Not by their environment, not by the physicians, nor by program makers. If one thing was very clear, this episode proved it.
For all those people with Lyme, persistents that you are: from the bottom of my heart I wish you a lot of strength and positive thoughts